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Chronic Illness, Vol. 1, No. 4, 321-329 (2005)
DOI: 10.1177/17423953050010040201

Recruiting older people into a large, community-based study of heart failure

Sarah Barnes

Sheffield Institute for Studies on Ageing, University of Sheffield, Elmfield, Northumberland Road, Sheffield, S10 2TU, UK, s.barnes{at}sheffield.ac.uk

Merryn Gott

Sheffield Institute for Studies on Ageing, University of Sheffield, Elmfield, Northumberland Road, Sheffield, S10 2TU, UK

Sheila Payne

School of Nursing and Midwifery, University of Sheffield, Bartolomé House, Winter Street, Sheffield, S3 7ND, UK

Chris Parker

Sheffield Institute for Studies on Ageing, University of Sheffield, Elmfield, Northumberland Road, Sheffield, S10 2TU, UK

David Seamark

Institute of General Practice, School of Postgraduate Medicine and Health Sciences, University of Exeter, Barrack Road, Exeter EX2 5DW, UK

Salah Gariballa

Sheffield Institute for Studies on Ageing, University of Sheffield, Elmfield, Northumberland Road, Sheffield, S10 2TU, UK

Neil Small

School of Health Studies, University of Bradford, 25 Trinity Road, Bradford BD5 0BB, UK

This paper highlights some of the challenges encountered when recruiting older people with heart failure into longitudinal, community-based research. It draws on the experience gained in a study to provide insights into the palliative care needs of older people with heart failure and the timing and need for service interventions. Five hundred and forty-two people with heart failure (New York Heart Association (NYHA) stages II—IV) and 213 of their informal carers were recruited from primary care practices in four areas of the UK. Ethical issues arising around gate-keeping, terminology and participant burden are discussed along with challenges faced during the recruitment process. Strategies to increase general practitioner and patient recruitment are provided. The paper concludes that prospective longitudinal studies are of particular relevance to chronic illness, and the complexity of setting up such research must be acknowledged and appropriately resourced.


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S. Barnes, M. Gott, S. Payne, C. Parker, D. Seamark, S. Gariballa, and N. Small
Predicting mortality among a general practice-based sample of older people with heart failure
Chronic Illness, March 1, 2008; 4(1): 5 - 12.
[Abstract] [PDF]