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Chronic Illness
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*Breast Cancer
*Health Literacy
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Promoting early presentation of breast cancer: development of a psycho-educational intervention

C.C. Burgess

Cancer Research UK London Psychosocial Group, Institute of Psychiatry, Kings College London Adamson Centre, St Thomas' Hospital, London SE1 7EH, UK, caroline.burgess{at}kcl.ac.uk

A.M. Bish

Cancer Research UK London Psychosocial Group, Institute of Psychiatry, Kings College London Adamson Centre, St Thomas' Hospital, London SE1 7EH, UK

H.S. Hunter

Cancer Research UK London Psychosocial Group, Institute of Psychiatry, Kings College London Adamson Centre, St Thomas' Hospital, London SE1 7EH, UK

P. Salkovskis

Department of Clinical Psychology & Applied Science, Institute of Psychiatry, DeCrespigny Park London SE5 8AF, UK

M. Michell

South East London Breast Screening Programme, Breast Radiology, King's College Hospital London SE5 9RS, UK

P. Whelehan

South East London Breast Screening Programme, Breast Radiology, King's College Hospital London SE5 9RS, UK

A.J. Ramirez

Cancer Research UK London Psychosocial Group, Institute of Psychiatry, Kings College London Adamson Centre, St Thomas' Hospital, London SE1 7EH, UK

Objectives: Women who delay presenting with breast cancer have a reduced chance of survival. Older women, who are at greater risk of developing breast cancer, are more likely to delay presenting with the disease. The aim of this developmental work was to design a psycho-educational intervention to promote early help-seeking by older women with breast cancer symptoms. We also aimed to demonstrate the feasibility of implementing the intervention with women attending for their final invited mammogram in the National Health Service (NHS) Breast Screening Programme.

Methods: The intervention was designed to address the factors associated with delayed presentation by women with breast cancer. These risk factors were placed in a theoretical framework to understand patient delay. The intervention incorporated behavioural change techniques that, according to previous research, have been demonstrated to be effective.

Results: The intervention was developed in two formats to be delivered by diagnostic radiographers: a booklet alone and a brief interview plus the booklet. The intervention was acceptable to both older women and healthcare professionals in the NHS Breast Screening Programme.

Discussion: The intervention will be tested ultimately in a multicentre randomized controlled trial to determine whether it can reduce the proportion of older women who delay their presentation and thereby save lives.

Key Words: Cancer • Delay • Help-seeking • Intervention

Chronic Illness, Vol. 4, No. 1, 13-27 (2008)
DOI: 10.1177/1742395307084404


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