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Chronic Illness, Vol. 3, No. 4,
265-277 (2007)
DOI: 10.1177/1742395307085335
The biographical impact of teenage and adolescent cancer
Anne Grinyer
Institute for Health Research, Lancaster University, Lancaster, LA1 4YT, UK, a.grinyer{at}lancaster.ac.uk
Objectives: This paper offers an overview of the findings of research into the experience of having cancer in adolescence and young adulthood, the aims of which were to understand how age and life stage affect the illness experience and impact upon biographies and life trajectories.
Methods: The data were gathered primarily through the use of in-depth qualitative interviews with adolescents and young adults with cancer, but also through the submission of a small number of written narratives.
Results: Acute and life-threatening illness at a transitional life stage on the threshold of adulthood can have a long-term, and therefore chronic, effect on the life trajectories and biographies of young adult cancer patients. Many aspects of the participants' lives were affected, including education, careers, life plans, friendship networks, appearance, sexuality and fertility. The economic effects could also be far-reaching and contribute to a loss of independence, which is very fragile in this age-group.
Conclusions: While recognizing the potentially devastating impact of cancer at any age, the research findings suggest a distinct effect in adolescence and young adulthood resulting from a disrupted biography at a critical transitional moment in the life trajectory that can have a chronic effect after the acute stage of the illness is passed. An age-appropriate approach to the care of young people with cancer that takes into account the distinct effects of life stage in this age-group can mitigate the negative impact on life trajectories and maximize the chances of adherence and a return to normal life after recovery.
Key Words: Adolescent • Biographies • Cancer • Disruption • Life stage
References
- Grinyer A. Cancer in young adults: through parents' eyes. Buckingham: Open University Press, 2002.
- Grinyer A. Young people living with cancer: implications for policy and practice. Buckingham: Open University Press, 2007.
- Albritton K., Bleyer WA The management of cancer in the older adolescent. Eur J Cancer 2003; 39: 2584—99.[CrossRef][Medline]
[Order article via Infotrieve]
- Steliarova-Foucher E., Stiller C., Kaatsch P., et al. Geographical patterns and time trends of cancer incidence and survival among children and adolescents in Europe since the 1970s (the ACCIS project): an epidemiological study. Lancet 2004; 364: 2097—105.[CrossRef][Medline]
[Order article via Infotrieve]
- Levi F., Lucchini F., Negri E., La Vecchia C. Trends in cancer mortality at age 15 to 24 years in Europe. Eur J Cancer 2003; 39: 2611—21.[CrossRef][Medline]
[Order article via Infotrieve]
- Apter T. The myth of maturity: what teenagers need from parents to become adults. New York: W.W. Norton and Co. Inc, 2001.
- Bury M. Chronic illness as biographical disruption. Sociol Health Illness 1982; 4: 167—182.[CrossRef][Medline]
[Order article via Infotrieve]
- Wilson S. `When you have children, you're obliged to live': motherhood, chronic illness and biographical disruption. Sociol Health Illness 2007; 29: 610—26.[Medline]
[Order article via Infotrieve]
- Pound P., Gompertz P., Ebrahim S. Illness in the context of older age: the case of stroke. Sociol Health Illness 1998; 20: 489—506.[CrossRef]
- Brannen J., Dodd K., Oakley A., Storey P. Young people, health and family life. Buckingham: Open University Press, 1994.
- Reile K. Youth transition in Australia: challenging assumptions of linearity and choice. J Youth Studies 2004; 7: 243—257.[CrossRef]
- Maguire S., Rennison J. Two years on: the destinations of young people who are not in education, employment or training at 16. J Youth Studies 2005; 8: 187—201.
- Grbich C. Qualitative research in health. London: Sage, 1999.
- Fielding N. Qualitative interviewing. In: Gilbert N, ed. Researching social life. London: Sage, 1995: 135—53.
- Kvale S. Interviews. Thousand Oaks: Sage, 1996.
- Robson C. Real world research. Oxford: Blackwell, 1995.
- Arksey H. Collecting data through joint interviews. Soc Res Update 1996; 15.
- Grinyer A. The anonymity of research participants: assumptions, ethics and practicalities. Soc Res Update 2002; 36.
- Glaser B., Strauss A. The discovery ofgrounded theory, Chicago: Aldine, 1967.
- May T. Social research: issues, methods and process. Buckingham: Open University Press, 1997.
- Miles MB, Huberman AM Qualitative data analysis. London: Sage, 1994.
- Alderson P., Morrow V. Ethics, social research and consulting with young people. Ilford: Barnardos, 2004.
- Balen R., Blyth E., Calabretto H., Fraser C., Horrocks C., Manby M. Involving children in health and social research: `human beings' or `active beings?'. Childhood 2006; 13: 29—48.[Abstract/Free Full Text]
- Hain R. Whose dying is it anyway? Palliative care in adolescence. In: Eden TOB, Barr RD, Bleyer A, Whiteson M, eds. Cancer and the adolescent. Oxford: Blackwell, 2005: 203—13.
- Reebals JF, Brown R., Buckner EB Nurse practice issues regarding sperm donation in adolescent male cancer patients. J Pediatr Oncol Nurs 2006; 23: 182—8.[Abstract/Free Full Text]
- Zebrack B. Young adult cancer survivors: shaken up, getting back, moving on. In: Balen R, Crawshaw M, eds. Sexuality and fertility issues in ill health and disability from early adolescence to adulthood. London: Jessica Kingsley Publishers, 2006: 221—33.
- Shaw N., Wilford H., Sepion B. Semen collection in adolescents with cancer. In: Gibson F, Soanes L, Sepion B, eds. Perspectives in paediatric oncology nursing. London: Whurr Publishers, 2004: 141—57.
- Boseley S. The Guardian, 8 March 2006, p. 5.
- Calder A. Young people and benefits. Benefits 2004; 12: 129—31.
- Craig F. Adolescents and young adults. In: Goldman A, Hain R, Liben S, eds. Oxford textbook of palliative care for children. Oxford University Press: Oxford, 2006: 108—18.
- Thomas DM Australia needs to improve management of young people with cancer. Press release.Available at: http://www.ivyrose.co.uk/Health/show_di.php?id=1027 (accessed April 2006).
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